Galatians 6:9

And let us not be weary in well doing: for in due season we shall reap, if we faint not. Galatians 6:9

Colossians 1:10

That ye might walk worthy of the Lord unto all pleasing, being fruitful in every good work, and increasing in the knowledge of God. Colossians 1:10

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Thursday, January 28, 2016

Benign Rolandic Epilepsy

Yahaira has epilepsy.

As much as I have tried to not admit it, there is no denying it. Last night she had her 3rd seizure. After 3, you can't really believe it's a fluke and not going to happen again.

Her first one was a grand mal seizure on October 15, 2015. That one was terrifying. You can read about it here.

On January 14, 2016 she had another seizure. Since she had been sick with a fever and headache the day before, I attributed the seizure to that (even though she had been healthy for 24 hrs before having the seizure).

On January 27, 2016 she had another seizure. She was not sick and had not been sick since being sick 2 weeks prior.

Back in October, when she had her first seizure and spent 2 nights in a Korean hospital, we were told by the pediatric neurologist that she had Benign Rolandic Epilepsy. The doctor said that Yahaira would most likely seizure again. I didn't want to believe her. After going 2 months without another seizure, I didn't think she would have another one. Now she's had 2 more in a 2 week span.

I'm thankful that she should grow out of this around the age of puberty.

This abstract from a book on epilepsy explains pretty well what the seizures are like. She definitely makes the gurgling, drowning sounds, has hypersalivation, mouth draws to one side, shakes, has loss of consciousness (though this last time Yahaira said she was trying to tell me she was seizuring but couldn't), and it always occurs at the on-set of sleep. They seem to be getting shorter in length, or I'm just not hearing them until she's already been seizuring for a bit.

I know that she is made just how God wanted her to be made. This all is for His glory. Though I don't want this for her or me, I see how it is a way to refine us both to be more like Christ and dependent on  our Creator.

5 comments:

  1. My daughter also had benign rolandic epilepsy. It was so hard for me to sleep at night because I was always worried about her seizing. We started her on Keppra after her 6th seizure and she has been seizure free ever since. She is 8 yrs old has now and has been off the Keppra for over a year and we are still in the clear. Good luck to you and your little one!

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  2. My daughter also had benign rolandic epilepsy. It was so hard for me to sleep at night because I was always worried about her seizing. We started her on Keppra after her 6th seizure and she has been seizure free ever since. She is 8 yrs old has now and has been off the Keppra for over a year and we are still in the clear. Good luck to you and your little one!

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    1. Glad to hear your daughter is doing well and seizure free. Ours has had 11 seizures so far, but we've opted not to medicate. They seem to be getting shorter...like 30 seconds or less, and she knows to just relax and not try to make it stop (which was making it worse for her, causing her to not be able to breath so well). Sometimes she's aware that she's seizuring and other times she is not, but it's always only been at the onset of sleep. We've gotten "used" to it, but she still falls asleep with someone near her.

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  3. Prayers for Yahaira and your family:)

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    Replies
    1. Thanks Heather! How's MN treating you all? We'll be "moving" back there this summer, then flopping between there and Daniel's next assignment. When we're in town we should definitely meet up!

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